Thursday, October 29, 2009

005 Snippets of Chapters 1 - 3 of Chronic Fatigue Unmasked 2000 Book

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October 29, 2009

I thought I would post some of the highlights of the book I'm reading on Adrenal Fatigue / CFS. It's called "Chronic Fatigue Unmasked 2000." It was written by the doctor who taught my doctor (Dr. Neville in PA) all about this disorder. The author is Dr. Gerald Poesnecker. So here's some snippets I've gleaned from this book that have been very helpful (the quotes are in brown below):

"Whereas six years ago most CFS patients were still considered to be malingering or just downright lazy by most physicians, they are not looked upon as "depressed" and placed on a variety of antidepressants. The use of antidepressants in CFS is like the use of NSAIDS in arthritis. They treat the symptoms but do nothing to correct the real cause of the condition... Thank goodness that there are medical men like Drs. David S. Bell, Paul R. Cheny and Charles W. Lapp who do understand CFS and know that it is not just another form of depression." (pgs ix-x)

Ha! Not just by doctors have I been considered lazy. I've got a host of people who have me down as "lazy" or "crazy" or "depressed" who have given up on me. Good thing Jesus never gave up on His promise to take care of me now and throughout eternity! He cares for the weak and sick. He tells us that He actually chose the weak and despised to inherit life. See:

1 Corinthians 1.26-29: "For consider your calling, brothers: not many of you were wise according to worldly standards, not many were powerful, not many were of noble birth. But God chose what is foolish in the world to shame the wise; God chose what is weak in the world to shame the strong; God chose what is low and despised in the world, even things that are not, to bring to nothing things that are, so that no human being might boast in the presence of God."

Also see my post about HOPE.

"The more these patients are given regular treatment, the worse they eventually become." (pg xi)

"I don't know if it's practical to attempt to differentiate between Chronic Fatigue Syndrome and Chronic Fatigue Immune Dysfunction. The mere fact that a virus is the stress factor that triggers the Chronic Fatigue reaction does not seem to me now to be such an imortant distinction." (pg xiv)

"The most common symptoms produced by this condition are unexplained exhaustion sometimes alternating with spells of anxiety or panic, a tendency to be oversensitive and/or allergeric to certain substances or environments, a lessening of the ability to reason rationally and to make decisions readily, a tendency toward low blood pressure, sensitivity to cold, poor circulation (cold hands and/or feet), and brain fog or other mental aberrations which can mimic a large variety of mental diseases." (pg 1)

"Personally, I think that much of this medical apathy has been produced by the general vagueness of this disease's character, by the neurotic-like symptoms of its victims and by the slow and tortuous path of its correction even with the best and most advanced therapies. " (pg. 2)

"The "scientific" physician, when confronted with a patient who displays the symptoms of CFS, has a ready answer: "The patient is depressed, neurotic, mildly psychotic, unmotivated or just bored with life." This that self-satisfied stance that can be a "badge of our trib," the patient is given a tranquilizer, antidepressant or both, and with the fatherly advice to stop worrying and to go to work he is sent home. It is just as impractical to tell a tubercular patient to go and play football as it is to tell a CFS patient to stop worrying. Am I exaggerating? Am I a little too hard on my medical contemproaries? One has only to remember that a short time ago patients were literally bled to death in an efford to satisfy this medical ego." (pg 3)

Here's what Wikipedia says about George Washington:
"George Washington asked to be bled heavily after he developed a throat infection from weather exposure. Almost 4 pounds (1.7 liters) of blood was withdrawn, much of it without a doctor's supervision, contributing to his death in 1799."

Yeah! And now docs are telling us to take a bunch of anti-anxiety (benzodiazepine) drugs and anti-depressants which are killing us. See videos HERE.

"Most chronic CFS patients are considered by their friends, relatives and health practioners - the people from whom they seek aid - to be suffering from some form of mental or psychological disturbance... One of the first and most important tasks of our therapy is to convice them that this is not true. Unless we accomplish this, treatment is difficult and sometimes nearly impossible. Many of these patients are called schizophrenic, some paranoiac, some manic-depressive, and most are called neurotic... chronic CFS can mimic the symptom patterns of all of these medical conditions." (pg 53)

I've been diagnosed with everything under the sun by doctors who never tested anything in my body. I was given about 12 different kinds of drugs including the very addictive drug, Klonopin for nearly 15 years, hospitalized (yes, mental hospitals!) and told I would probably kill myself. Had they just looked into the endocrine system and asked, "why is this happening?" they would have seen I've been very, very sick for a long time and needed their help, not their destructive drugs.

"Counseling, even by the best of physicians, often has little effect on these patients. About the only help at the present time for this patient is an active treatment of the general adaptive system to improve the oxygen-carrying power ot the tissues of the brain so that it can again function in a more rational manner." (pg 57)

"Somewhere in the life of a CFS patient there has to be a rock-stable person to offer support and sustenance, or his whole existence is built on constantly shifting sands... One of the most common symptoms of the chronic CFS patient is a feeling that he has an illness that no one can understand ant that no one has had before. Friends and relatives assure him that they have never heard of anything like it." (pg 60)

My husband, Roger, is that rock-stable person the Lord has given me. He does everything he can to alleviate the stresses in my life, even if that means he has to cook something for me and let me lay in bed or hold me while I'm crying and in pain. He defends me when his family members have called me names and laughed at me. I love him very much for all the sacrifices he has made on my behalf.

"Many individuals who are drained of energy by those around them feel that they are victims of agoraphobia, that is, fear of crowds, mainly because when they are in a crowd, they find they they grow weak and anxious. Generally this is not true agoraphobia, but merely the draining effect, or what I call the "leeching effect" that crowds have on CFS patients. This is one of the earliest symptom patterns I usually notice in CFS cases... If there is a function the CFS patient wishes to or must attend, however, we suggest that he remain for as short a time as possible... even events and circumstances that the patient enjoys or that might be a happy surprise fatigue and weaken him. A surprise birthday party, a visit from a long-forgotten friend, or a telephone call from a sweetheart - all of these things strengthen the body and spirt of almost everyone except the CFS patient. This is perhaps the saddest component of the entire condition." (pg 61-63)

It is interesting that agoraphobia is one of the first things I had from my late teens on through the years. It's even worse now, but now I realize it's produced from weakened adrenals (that will heal!). Psychiatrists always said it was fear I had and that I could talk myself out of it. For over 15 years, I tried what they said. Fail! It didn't work. I would tell them it wasn't until I got into the group of people or whatever that I started feeling drained and anxious. Anyway, now I know what's going on in my body. My weakened system just can't handle the normal stresses of life (even good stresses) until I heal these little adrenal glands. Then I will be able to handle the normal stresses that non-adrenal patients can handle. Until then, I cannot put myself in those situations because I would be going backwards in my healing of my body.

My other blogs can be found HERE and HERE.

The original post for this daily diary began HERE.

Coram Deo,
Tamara Slack


Mindy said...

1. sniff sniff. thank the Lord for Roger.

2. Fail! lololoololol

3. agoraphobia. huh. yep, that's me. even when it's company i like. boo. and for the record, an old friend invited me to a halloween housewarming party this saturday. and though i really miss her and would like to go, i know that situation is not what i need right now. so i simply told her that i'm dealing with a stress related condition right now and can't do the crowd thing. ;) she was very understanding.

4. you may be *relieved* to hear that Eric was denied the extra time off. So we will not make it to see you guys. although I AM QUITE DISAPPOINTED, I'm sure it's for the best for both of us. HOWEVER... since i now have to ship the cake i'm building for you (wink wink), you CANNOT open it until you are on the phone with us. DEAL?

Grace Abounds said...

Mindy -

Yep, though of you when I typed "Fail!" lol

Glad to hear you didn't push yourself to do the housewarming party. That agoraphobia thing is awful, huh? Well, it will all go away when the hormones and adrenal glands heal... doc said even my PMS and hypoglycemia will be gone (WOW! Looking forward to that!).

I wish you guys could come, but you know the drill as well as me :)

Deal on the cake. I'll not open or eat it 'till we are on the phone. Now I'd like it in the mail THIS WEEK YOUNG LADY!